Posted in Chronic illnesses

Worn Out!!!

So many of us are familiar with the vicious cycle that chronic illness presents. Overdoing things on the good days is part of that process and I overdid things. Now, no amount of sleep or rest can help. It is just a matter of waiting the flare up out. I still have a workweek to start and a final paper due in one week for my Family Law course.

The problem with autoimmune diseases like rheumatoid arthritis is that they strike people between ages 20 and 50 who have a lot of living left to do. I have so many responsibilities and people depending on me and RA does not fit into my crazy life. My kids have been bugging me to the park for days and today, I finally gave in and fifteen minutes after we go there, we had to leave because I was in so much pain. Needless to say, my kids were disappointed. The muscle and joint pain always win and not my kids or me.

Yes, this is the frustration of living life with chronic pain and the sad reality is that I don’t get better. In fact, I am lucky if my health does not get worse. Chronic illness definitely brings with it a new reality and we are not the only ones affected. Our loved ones are affected as well. My ten year old has numerous times gotten frustrated with me and asked me why I am not like other mothers. It is not that easy explaining to him that other mothers do not live with chronic illness. There are times where my toddler wants my attention I can’t give it to him and he becomes frustrated as well.

Today was definitely a frustrating day for all and as for me, I ache terribly and it hurts even to lie down. I wonder if remission actually exists. To me, remission from RA is like something to available for a lucky few. The percentage of people who actually go into RA remission is only 30% and I can’t imagine myself being one of those people, considering the craziness that is my life.

Clinical remission is an absence of the clinical signs of inflammation. However, RA patients are not able to discontinue their medications so they must remain taking medications to stay in remission. The American College of Rheumotology has a criteria to determination clinical remission. That criteria is a combination of the following: morning stiffness is less than 15 minutes, no fatigue, no joint pain, no joint tenderness or pain with motion, no soft tissue swelling in joints or tendons, and an erythrocyte sedimentation rate less than or equal to 30 in females and 20 in males. The good news is that the longer the disease stays in remission, the less likely it is to become active again.

I will probably call it an early night and pray that tomorrow will be better. Flare-ups are depressing and I am not good company.


5 thoughts on “Worn Out!!!

  1. Hi Lana,Glad to hear I'm not the only one that is not good company today. Pain has made me a big grump with my kiddos today. I pray you feel some relief tomorrow. I hope our children recognize the good intentions that come out of our love for them–even when we can't do all that we would like with them. It's so hard to call it a day with our kids because of pain. It's depressing and frustrating! You have my permission to through a big pity party. Because it's your party and you can cry if you want to! By the way, I love your new header. It looks great!

  2. Lana, overdoing is a way of life for me now. I have always pushed myself, and after being diagnosed with RA, I know better … but I still do it. I am hurting today from doing a 160 mile ride early yesterday, then rushing home to mow, trim mow and weed eat my yard (3 acres) before the rain moved in last night. Often times, we work so hard through the pain, just to try to do normal things, then to hear your family ask why can't you be like others. Hang in there, I wish I could tell you it gets better, but we both know I'd be lying.

  3. I am sorry to hear that you aren't feeling so great right now. I know how hard it can be with kids when you are feeling lousy. I sometimes just get tired of apologizing for not being able to do the things that I really would like to do but my body will not allow. I hope after some rest you will feel a bit better.((((Hugs))))Jo-Ann

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s