I have never really talked about my condition because it has taken me so long (years) to actually understand it or even to describe to those who do not have the disease. In addition, the outside world (those not suffering from RA) do not understand nor can begin to imagine what is like living with Rheumatoid Arthritis.
For me to tell others that “some days are good and some aren’t” doesn’t even begin to define the pain, the fatigue, and the general “just not feeling well” aspects of RA. I have learned that there is a sequence that my flare ups follow. It is emotional and physical depending on the severity of the flare up. Of course, not everyone has the same sequence, but every RA patient learns to have some understanding of their condition.
For me, it is best described as a roller coaster of pain, fatigue and not feeling well
For a patient dealing with Rheumatoid Arthritis, the physical and emotional aspects go hand and hand. Treatment in each individual is as different as is the disease progression and variation is in each patient. In other words, what works for one patient being treated may not work for another. The treatment of the disease plays an important role in the emotional and internal state of the patient. For me, I think each individual’s physical and mental states play an important role in the manifestation of the disease since any disease manifests itself uniquely to its host.