And so I cried…finally


Sometimes being strong is overrated and you cannot always continue to be strong.   My mother is the strongest woman I know and lately, she has relied on me to be strong for her.  After two TIAs, she had a stroke a week ago. The balancing act between home and work and being at the hospital is tough and it is wearing me down.  Mom is heading to a rehabilitation facility after she is discharged from the hospital which could be sometime this week.

I stopped this morning and talked to the director of the rehab facility that the hospital recommended. The assistant director was giving me examples of the type of services they offered for stroke rehab and I just started crying.  All that toughness and that composure I had maintained to fool everyone went out the window at the moment. I was being tough to ease my mother’s and children’s fears. I was strong to the point where I was able to hide my emotions.

I was hiding them from my family and everyone I came across including Mom’s doctors and nurses and even my co-workers.  How can you be strong when the strongest person you know can’t be? The answer is you shut down because you cannot let that person and anyone else relying on you see that you don’t have the answers.  So of course, I cried. After all, I held it in too long.

I had this dream last night about shoes. I am not kidding. There were shoes spread out nicely against the wall in my dining room and they were familiar shoes.  I figure I would not remember them if the dream wasn’t significant.  A visit to a dream interpretation website tells that shoes, in general, represent our approach to life.  If a person is changing/putting on shoes, it means that they are changing roles and taking a new approach to life.  I am not sure if I was changing shoes or getting ready to put them on but I understand what the dream message is. The thing is that I am not unhappy about my roles changing. The fact is I know that they will change and I am okay with that – I am just not really sure how.  I feel like I am not in control of the timing and path and that scares me. I have never lived life moment by moment but with Mom being sick, I don’t really have a choice.  I try to plan but it does not always work like that.

I had a couple dreams before this one that laid impact on me. The one prior was about Dad and he wasn’t talking to me in the dream.  In the dream, I asked Mom why he was mad and she told me he was not happy about the way my siblings and I were handling things.  Originally, I thought it had something to do with the rehab plan but the more I have thought about it, the more I realized that we are not on the same page about my mom’s treatment and rehab plan. We act as if we are but we are all making different decisions and making them without consulting one another. I am trying to work through this but I have one sibling who does nothing, one who should really be focused on himself and his studies, and one that does enough to get by. I don’t think that will ever change because it was life that when my brother was sick two years ago.  I kind of feel like I am replaying those days.

Prior to the dream about Dad, I head this dream that my late brother was coming to this party.  Every time someone walked in the room, I turned to see if it was him. Needless to say, I woke up before he arrived. After awakening, I asked him not to come especially if it meant that Mom would get worse.  

The doctors say that Mom will get better with rehab. However, they are not ruling out another stroke. That is what scares me. I cried this morning while talking to rehab director because realized how much work my mom needs before she can go back to being independent.  I am also worried about the possibility of another stroke. I think she is worried about that. What I can tell you is that the visit to the rehab facility eased my fears and I think I am putting Mom in good hands. The facility is specialized in stroke rehab and they have seen worse cases than my mom’s. So I have to put my faith in them as well as God and just hope for the best.  

We had a bump in the road today. It had to do with Mom’s insurance. Simply put, she had a change in circumstances and they cancelled her. We notified them and set the record straight and that issue should get resolved today. It was enough to put me in a state of frenzy but I am glad it was resolved.

I am also considering taking some time off from work under the Family Medical Leave Act. The balancing act is making my RA and fibromyalgia symptoms worst. I noticed that last night when I was too worn out to have a meaningful conversation with the nurses. The brain fog kicked and I have not been a victim of brain fog in a long time.  I am also struggling to get up in the morning and I am lucky that I am making it to work on time. It is stressful and tiring to say the least. If I keep going with the way things are now, my RA and fibro symptoms will come back to haunt me and trust me, I don’t miss the really bad days.

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About Lana

I will start by saying that my blog is about who I am and how I have grown, preserved, and endured since being diagnosed. I was diagnosed with rheumatoid arthritis (RA) and fibromyalgia (FM) nearly five years ago after many years of dealing with symptoms that no doctor could explain. All I wanted was closure and, to me, that meant finding an answer to why I didn’t feel normal. Several days after having my now almost five year old, I awoke to the inability to walk or use my hands and within a week, I finally had a diagnosis and this time, it sank in that it was real thing. Steroids, a lack of energy, and physical pain take a toll on you. What the illness does to us, we cannot control. How we respond, how we choose to fight back, and how we go on is our defense against the war waging inside of us. Imagine being in a dark room and trying to make your way around. Then, imagine that you find a light switch and the room becomes dim, not bright, but enough for you to navigate your way. For years, I was in the dark about what was happening to me, and then one day, the room became dimly lit. What I wanted was closure but instead I found that there were more questions than there were answers. I learned that I had to change my perceptions on what closure meant to me and in this case it meant accepting that chronic illness was now a part of my life. One of the things that I do know is that I am not alone and that there were so many exceptional people who, like me, are looking for closure, answers and normalcy. I share my experiences because I want to live a “normal” life and I want others to see that it is okay to have a normal life and to keep dreaming, trying, believing and looking towards the future. I write about my life with RA and FMS, my diagnosis, and my quest to find answers and I continue to do so because when it gives others hope it gives me hope too. I have found through my experience and the experiences of others dealing with the same conditions that living with arthritis and/or an autoimmune disease gets easier even though the disease gets harder. RA and FM may control how I physically feel but they do not control who I am or how I choose to respond. It is never going to be easy and some days, the emotional part is worse than the physical but we all struggle with something and for me, it is RA and FM.
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13 Responses to And so I cried…finally

  1. babyfeat says:

    I’m glad that you feel good about the facility your Mom is going to. I hope that helps to ease your mind a bit that she will be in good hands and there is constant supervision to make sure she is okay. My heart goes out to you. It is so difficult seeing a parent be ill and having to suddenly change roles. I worry about your own well-being during this time. I’m glad you are taking time to figure out what you also need to stay as healthy as possible. Many hugs to you and your Mom.

    • Lana says:

      Thanks Deb. While she is in good hands, she are still some things she does not let the rehab facility do for her. There are many things that she perfers that my sister and I do.

      • babyfeat says:

        That is a lot on you both. I can understand your mother hating to feel so vulnerable and un-empowered. You have a lot on your plate. I hope you have some time to rest and take care of yourself too. This is such a difficult situation for all involved.

      • Lana says:

        Thanks Deborah. I am doing the best I can considering everything. The good news is that she is showing a lot of improvment.

      • babyfeat says:

        That’s fantastic to hear!

  2. carlascorner says:

    Lana: Just because you cry doesn’t mean you’re strong. It’s good and healthy to let those emotions out once in a while. It sounds like you’ve found a good place for your Mom and that should take an enormouse burden off you and your family knowing she’ll be well cared for. Taking some FMLA time off is probably a good thing for you as well. You need the rest and recovery as much as your Mom. Sending hugs your way.

  3. Cathy says:

    Oh Lana, cry!!!!! Let those emotions/toxins out of your body so you can move on. I LOVE a good cry because afterwards my body feels relieved of the pressure and I feel a new motivation to move on in a positive way. Your body is telling you it is time to let go.

    Crying in no way means you are weak. In fact, I still have strong images of my dad shedding a few tears and remembering that although he was our leader, he had feelings too. For me, his tears brought strength that he had feelings and was strong enough to express them.

    You have been through so much the last few years. I can’t even imagine what your body is saying to you, but I am sure it is ready for a rest. Be good to yourself first and foremost Lana. Everything else will fall into place. Sending hugs and positive thoughts your way Lana.

    • Lana says:

      I have a bad habit of trying to be so strong all the time. I think it is my biggest weakness – funny how strength can be a weakness. Thanks for you kind words and advice, Cathy.

  4. Wren says:

    Sweet Lana. So much on your shoulders all at once! Mom’s stroke recovery, kids, work, your own RA and fibro, bills, meals, money, transportation time… of COURSE you need to cry! I’m a bit like you in that it takes a lot to make me cry, but oh, my. Sometimes we need to release all that pent up emotion! Crying doesn’t equal weak.

    Somehow, you must find a way to take care of YOURSELF, too. DO take FLMA. Otherwise, my dear, you’ll end up flattened. My heart aches for you. I’m sending all the calm, courage and care I can your way.

    • Lana says:

      Thanks Wren. I am glad that someone relates to me with the being strong all the time part. I am going my best to take care of my life. Sometimes, you just have to take the cards you have been dealt and just keep moving. You have to throw yourself into what you are doing in order to be able to deal with the stress involved. Thank you so much for your kind words and advice.

  5. Terry says:

    Lana, you have had a lot to deal with lately, you can’t hold it inside and hide it forever. You’re tough but you’re also human. Glad you have confidence in the facility. Don’t forget that you need to take care of yourself through all of this.

    • Lana says:

      Thanks Terry for your find words. One day at a time. My mom is showing alot of progress at rehab. She should be able to go home by the end of the month.

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